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How To Find a Doctor or Treatment
Facility If You Have Cancer
If you have been diagnosed with cancer, finding a doctor and
treatment facility for your cancer care is an important step to getting
the best treatment possible. Although the health care delivery system
is complex, resources are available to guide you in finding a doctor,
getting a second opinion, and choosing a treatment facility. Below are
suggestions and information resources to help you with these important
decisions.
Physician Training and Credentials
When choosing a doctor for your cancer care, you may find it helpful to know
some of the terms used to describe a doctor’s training and credentials. Most
physicians who treat people with cancer are medical doctors (they have an M.D.
degree). The basic training for a physician includes 4 years of premedical education
at a college or university, 4 years of medical school to earn an M.D. degree,
and a residency consisting of 3 to 7 years of postgraduate education and training.
Physicians must pass an exam to become licensed (legally permitted) to practice
medicine in their state. Each state or territory has its own procedures and
general standards for licensing physicians.
Specialists are physicians who have completed their residency training in a
specific area, such as internal medicine. Independent specialty boards certify
physicians after they have fulfilled certain requirements. These requirements
include meeting specific education and training criteria, being licensed to
practice medicine, and passing an examination given by the specialty board.
Doctors who have met all of the requirements are given the status of “Diplomate”
and are board-certified as specialists. Doctors who are “board-eligible” have
obtained the required education and training, but have not completed the specialty
board examination.
After being trained and certified as a specialist, a physician may choose to
become a subspecialist. A subspecialist has at least 1 additional year of full-time
education in a particular area of a specialty. This training is designed to
increase the physician’s expertise in a specific field. Specialists can be board-certified
in their subspecialty as well.
The following are some of the specialties and subspecialties that pertain to
cancer treatment:
- Hematology is a subspecialty of internal medicine. Doctors
who are specialists in internal medicine treat a wide range of medical
problems. Doctors who subspecialize in hematology focus on diseases
of the blood and related tissues, including the bone
marrow, spleen, and lymph glands.
- Medical Oncology is a subspecialty of internal medicine.
Subspecialists in medical oncology treat all types of benign
(noncancerous) and malignant (cancerous) tumors.
- Radiation Oncology is a subspecialty of radiology.
Radiology is the use of x-rays and other forms of radiation
to diagnose and treat disease. Radiation oncologists are subspecialists
in the use of radiation to treat cancer.
- Surgery is a specialty that pertains to the treatment
of disease by surgical operation. General surgeons are specialists
who perform operations on almost any area of the body. Physicians
can also choose to specialize in a certain type of surgery; for example,
thoracic surgeons are specialists who perform operations specifically
in the chest area, including the lungs and the esophagus.
Information about other specialties that treat cancer is available from the
American Board of Medical Specialties® (ABMS) in a booklet called Which
Medical Specialist For You? This publication is available at http://www.abms.org/which.asp
on the Internet. It can also be obtained by calling the ABMS at 847–491–9091,
or by writing to: American Board of Medical Specialties, Suite 404,
1007 Church Street, Evanston, IL 60201–5913.
Almost all board-certified specialists are members of their medical specialty
society. Physicians can attain Fellowship status in a specialty society, such
as the American College of Surgeons (ACOS), if they demonstrate outstanding
achievement in their profession. Criteria for Fellowship status may include
the number of years of membership in the specialty society, years practicing
in the specialty, and professional recognition by peers.
Finding a Doctor
A common way to find a doctor who specializes in cancer care is to ask for
a referral from your primary care physician. Sometimes, you may know a specialist
yourself, or through the experience of a family member, coworker, or friend.
The following resources may also be able to provide you with names of doctors
who specialize in treating specific diseases or conditions. However, these resources
may not have information about the quality of care that the doctors provide.
- Your local hospital or its patient referral service may be able to provide
you with a list of specialists who practice at that hospital.
- Your nearest National Cancer Institute (NCI)-designated
cancer center can provide information about doctors who practice at
that center. The NCI fact sheet The National Cancer Institute Cancer
Centers Program describes and gives contact information, including
Web sites, for NCI-designated cancer treatment centers around the
country. Many of the cancer centers’ Web sites have searchable directories
of physicians who practice at each facility. The NCI’s fact sheet
is available at http://cis.nci.nih.gov/fact/1_2.htm on the
Internet, or by calling the Cancer Information Service (CIS)
at 1–800–4–CANCER (1–800–422–6237).
- The American Board of Medical Specialties (ABMS) publishes a list of board-certified
physicians. The Official ABMS Directory of Board Certified Medical
Specialists lists doctors’ names along with their specialty and
their educational background. This resource is available in most public
libraries. The ABMS also has a Web site that can be used to verify
whether a specific physician is board-certified. This free service
is located at http://www.abms.org/login.asp on the Internet.
Verification of a physician’s board certification can also be obtained
by calling the ABMS at 1–866–275–2267 (1–866–ASK–ABMS).
- The American Medical Association (AMA) provides an online service called
AMA Physician Select that offers basic professional information on
virtually every licensed physician in the United States and its possessions.
The database can be searched by doctor’s name or by medical specialty.
The AMA Physician Select service is located at http://www.ama-assn.org/aps/amahg.htm
on the Internet.
- The American Society of Clinical Oncologists (ASCO)
provides an online list of doctors who are members of ASCO. The member
database has the names and affiliations of over 15,000 oncologists
worldwide. It can be searched by doctor’s name, institution’s name,
location, and/or type of board certification. This service is at http://www.asco.org/asco/ascoMainConstructor/1,47468,_12|002215,00.asp
on the Internet.
- The American College of Surgeons (ACOS) Fellowship Database is an online
list of surgeons who are Fellows of the ACOS. The list can be searched
by doctor’s name, geographic location, or medical specialty. This
service is located at http://web.facs.org/acsdir/default_public.cfm
on the Internet. The ACOS can be contacted at 633 North Saint Clair
Street, Chicago, IL 60611–3211; or by telephone at 312–202–5000.
- Local medical societies may maintain lists of doctors in each specialty.
- Public and medical libraries may have print directories of doctors’ names,
listed geographically by specialty.
- Your local Yellow Pages may have doctors listed by specialty under “Physicians.”
The Agency for Healthcare Research and Quality (AHRQ) offers Your Guide
to Choosing Quality Health Care, which has information for consumers
on choosing a health plan, a doctor, a hospital, or a long-term care
provider. The Guide includes suggestions and checklists that you can
use to determine which doctor or hospital is best for you. This resource
is available at http://www.ahrq.gov/consumer/qntool.htm on the
Internet. You can also order the Guide by calling the AHRQ Publications
Clearinghouse at 1–800–358–9295.
If you are a member of a health insurance plan, your choice may be
limited to doctors who participate in your plan. Your insurance company
can provide you with a list of participating primary care doctors
and specialists. It is important to ask your insurance company if the
doctor you choose is accepting new patients through your health plan.
You also have the option of seeing a doctor outside your health plan
and paying the costs yourself. If you have a choice of health insurance
plans, you may first wish to consider which doctor or doctors you would
like to use, then choose a plan that includes your chosen physician(s).
There are many factors to consider when choosing a doctor. To make the most
informed decision, you may wish to speak with several doctors before choosing
one. When you meet with each doctor, you might want to consider the following:
- Does the doctor have the education and training to meet my needs?
- Does the doctor use the hospital that I have chosen?
- Does the doctor listen to me and treat me with respect?
- Does the doctor explain things clearly and encourage me to ask questions?
- What are the doctor’s office hours?
- Who covers for the doctor when he or she is unavailable? Will that person
have access to my medical records?
- How long does it take to get an appointment with the doctor?
If you are choosing a surgeon, you may wish to ask additional questions about
the surgeon’s background and experience with specific procedures. These questions
may include:
- Is the surgeon board-certified?
- Has the surgeon been evaluated by a national professional association of
surgeons, such as the American College of Surgeons (ACOS)?
- At which treatment facility or facilities does the surgeon practice?
- How often does the surgeon perform the type of surgery I need?
- How many of these procedures has the surgeon performed? What was the success
rate?
It is important for you to feel comfortable with the specialist that you choose,
because you will be working closely with that person to make decisions
about your cancer treatment. Trust your own observations and feelings
when deciding on a doctor for your medical care.
Other health professionals and support services may also be important
during cancer treatment. The NCI fact sheet Your Health Care Team:
Your Doctor Is Only the Beginning has information about these providers
and services, and how to locate them. This fact sheet is located at
http://cis.nci.nih.gov/fact/8_10.htm on the Internet, or can
be obtained by calling the CIS at 1–800–4–CANCER (1–800–422–6237).
Getting a Second Opinion
Once you receive your doctor’s opinion about the diagnosis and treatment
plan, you may want to get another doctor’s advice before you begin treatment.
This is known as getting a second opinion. You can do this by asking
another specialist to review all of the materials related to your case.
A second opinion can confirm or suggest modifications to your doctor’s
proposed treatment plan, provide reassurance that you have explored
all of your options, and answer any questions you may have.
Getting a second opinion is very common, and most physicians welcome another
doctor’s opinion. In fact, your doctor may be able to recommend a specialist
for this consultation. However, some people find it uncomfortable to request
a second opinion. When discussing this issue with your doctor, it may be helpful
to express satisfaction with your doctor’s decision and care, and mention that
you want your decision about treatment to be as thoroughly informed as possible.
You may also wish to bring a family member along for support when asking for
a second opinion. It is best to involve your doctor in the process of getting
a second opinion, because your doctor will need to make all of your medical
records (such as your test results and x-rays) available to the specialist.
Some health care plans require a second opinion, particularly if a doctor recommends
surgery. Other health care plans will pay for a second opinion if the patient
requests it. If your plan does not cover a second opinion, you can still obtain
one if you are willing to cover the cost.
If your doctor is unable to recommend a specialist for a second opinion, or
if you prefer to choose one on your own, the following resources can help:
- Many of the resources listed above for finding a doctor can also
help you find a specialist for a consultation.
- The Pediatric Oncology Branch of the NCI’s Center for Cancer
Research is dedicated to providing the best medical care possible
to children, teenagers, and young adults with cancer or HIV
disease. The Pediatric Oncology Branch offers a second opinion service
to physicians, patients, and their families. Their Web site is located
at http://www-dcs.nci.nih.gov/branches/pedonc on the Internet.
To request a second opinion from the Pediatric Oncology Branch, you
or your physician may call 1–877–624–4878 or 301–496–4256 between
8:30 a.m. and 5:00 p.m., Eastern time.
- The R. A. Bloch Cancer Foundation, Inc., can refer cancer patients
to institutions that are willing to provide multidisciplinary second
opinions. A list of these institutions is available at http://www.blochcancer.org/articles/xtrnew.asp
on the Internet. You can also contact the R. A. Bloch Cancer Foundation,
Inc., by telephone at 816–932–8453 (816–WE–BUILD) or 1–800–433–0464.
Finding a Treatment Facility (for Patients Living in the United
States)
Choosing a treatment facility is another important consideration
for getting the best medical care possible. Although you may not
be able to choose which hospital treats you in an emergency, you
can choose a facility for scheduled and ongoing care. If you have
already found a doctor for your cancer treatment, you may need to
choose a facility based on where your doctor practices. Your doctor
may be able to recommend a facility that provides quality care to
meet your needs. You may wish to ask the following questions when
considering a treatment facility:
- Has the facility had experience and success in treating my condition?
- Has the facility been rated by state, consumer, or other groups
for its quality of care?
- How does the facility check and work to improve its quality
of care?
- Has the facility been approved by a nationally recognized accrediting
body, such as the American College of Surgeons (ACOS) and/or the
Joint Commission on Accredited Healthcare Organizations (JCAHO)?
- Does the facility explain patients’ rights and responsibilities?
Are copies of this information available to patients?
- Does the treatment facility offer support services, such as
social workers and resources to help me find financial
assistance if I need it?
- Is the facility conveniently located?
If you are a member of a health insurance plan, your choice of
treatment facilities may be limited to those that participate in
your plan. Your insurance company can provide you with a list of
approved facilities. Although the costs of cancer treatment can
be very high, you have the option of paying out-of-pocket if you
want to use a treatment facility that is not covered by your insurance
plan. If you are considering paying for treatment yourself, you
may wish to discuss the potential costs with your doctor beforehand.
You may also want to speak with the person who does the billing
for the treatment facility. In some instances, nurses and
social workers can provide you with more information about coverage,
eligibility, and insurance issues.
The following resources may help you find a hospital or treatment
facility for your care:
- The NCI fact sheet The National Cancer Institute Cancer Centers
Program (described above in the section “Finding a Doctor”)
describes and gives contact information for NCI-designated cancer
treatment centers around the country.
- The ACOS accredits cancer programs at hospitals and other treatment
facilities. More than 1,400 programs in the United States have
been designated by the ACOS as Approved Cancer Programs. The ACOS
Web site offers a searchable database of these programs at http://web.facs.org/cpm/default.htm
on the Internet. The ACOS can be contacted at 633 North Saint
Clair Street, Chicago, IL 60611–3211; or by telephone at 312–202–5000.
- The JCAHO is an independent, not-for-profit organization that
evaluates and accredits health care organizations and programs
in the United States. It also offers information for the general
public about choosing a treatment facility. The JCAHO Web site
is located at http://www.jcaho.org/ on the Internet. The
JCAHO is located at One Renaissance Boulevard, Oakbrook Terrace,
IL 60181–4294. The telephone number is 630–792–5800.
The JCAHO offers an online Quality Check service that patients
can use to determine whether a specific facility has been accredited
by the JCAHO and view the organization’s performance reports.
This service is located at http://www.jcaho.org/qualitycheck/directry/directry.asp
on the Internet.
- The AHRQ publication Your Guide To Choosing Quality Health
Care (described above in the section “Finding a Doctor”) has
suggestions and checklists for choosing the treatment facility
that is right for you.
Finding a Treatment Facility (for Patients Living Outside the United
States)
If you live outside the United States, facilities that offer cancer
treatment may be located in or near your country. Cancer information
services are available in many countries to provide information
and answer questions about cancer; they may also be able to help
you find a cancer treatment facility close to where you live. A
list of these cancer information services is available at http://cis.nci.nih.gov/resources/intlist.htm
on the Internet, or may be requested by writing to the NCI Public
Inquiries Office, Cancer Information Service Branch, Room 3036A,
6116 Executive Boulevard, MSC 8322, Bethesda, MD 20892–8322, USA.
The International Union Against Cancer (UICC) is another resource
for people living outside the United States who want to find a cancer
treatment facility. The UICC consists of international cancer-related
organizations devoted to the worldwide fight against cancer. UICC
membership includes research facilities and treatment centers, and
in some countries, ministries of health. Other members include volunteer
cancer leagues, associations, and societies. These organizations
serve as resources for the public and may have helpful information
about cancer and treatment facilities. To find a resource in or
near your country, contact the UICC at:
International Union Against Cancer
3, Rue du Conseil General
1205 Geneva
Switzerland
Telephone: 41 22 809 18 11
E-mail: info@uicc.org
Web site: http://www.uicc.org/
Some people living outside the United States may wish to have their
cancer treatment in this country. Many facilities in the United
States treat international cancer patients. These facilities may
also provide support services, such as language interpretation,
assistance with travel, and guidance in finding accommodations near
the treatment facility for international patients and their families.
If you live outside the United States and would like to obtain
cancer treatment in this country, you should contact cancer treatment
facilities directly to find out whether they have an international
patient office. The NCI fact sheet The National Cancer Institute
Cancer Centers Program (described above in the section “Finding
a Doctor”) offers contact information for NCI-designated cancer
centers throughout the United States. You may request a copy by
writing to the NCI Public Inquiries Office, Cancer Information Service
Branch, Room 3036A, 6116 Executive Boulevard, MSC 8322, Bethesda,
MD 20892–8322, USA.
Citizens of other countries who are planning to travel to the United
States for cancer treatment generally must first obtain a nonimmigrant
visa for medical treatment from the U.S. Embassy or Consulate in
their home country. Visa applicants must demonstrate that the purpose
of their trip is to enter the United States for medical treatment;
that they plan to remain for a specific, limited period; and that
they have a residence outside the United States and intend to return
to their home country.
To apply for a nonimmigrant visa for medical treatment, you will
need:
- A letter from a health care official stating the diagnosis and
approximate cost of treatment;
- Documentation showing that the treatment is not available in
your home country;
- Proof of sufficient funds to cover the treatment and the cost
of your stay in the United States;
- A trip itinerary;
- A valid passport;
- Two 1.5–inch square photographs of each applicant (full face
without head covering, against a light background);
- A completed Application Form DS–156 (this form is available
at http://travel.state.gov/DS-0156.pdf on the Internet;
blank forms are also available without charge at all U.S. Consular
offices); and
- A US$65 application fee, which is nonrefundable.
If you have questions about visa eligibility or application procedures,
contact the U.S. Embassy or Consulate in your home country. A list
of links to the Web sites of U.S. Embassies and Consulates worldwide
can be found at http://travel.state.gov/links.html on the
Internet. More information about visa services is available on the
U.S. Department of State’s Web site at http://travel.state.gov/visa_services.html
on the Internet.
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